To Tell or Not To Tell She Has MDS

When Thea was four I signed her up for preschool. Filling out the application, I paused when I saw the question, does you child have any disabilities? I scribbled no like I was covering up a dirty secret. Guilt crept in my heart because I knew my little girl, by school standards, belonged in that…

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Thea’s Interview

I thought I would interview Thea to give you an idea of how she speaks and processes questions.  Some of the questions I asked her you can tell she didn’t quite understand.  Some of her answers you can’t tell what she says, but overall quite cute! By the way, the picture you see above is…

Speech

Speech and Language, It’s Not a Quick Fix Well, I’m not sure about you, but normally if there is a problem I try to fix it.  If I can’t fix it, then I hire the expert who can fix it.  And my expectations are, that it will be fixed right away.  Maybe not that exact…

Speech Therapy

How God has Played a Role in Thea’s Speech Therapy When I first realized that Thea needed speech therapy, I had no idea what that really meant.  I never had to experience the world of disabilities before.  This world is far different from anything I have ever been in.  It is a world in which…

Strengths and Weaknesses

I started this blog to help you (new parents who just found out you are going to or already have a baby with MDS) to show that it’s going to be OK.  I wanted you to be able to google MDS and see good news! Thea is now 5 years old.  She is in Kindergarten this year and is doing…

How to get Funding for Therapy

When Thea was born, I wanted to know what she would need help with.  I wanted to understand and prepare myself for what was going to come down the road as she started to get older.  However, I never got those answers because the doctors didn’t have them.  The only thing they could tell me…

Update on Thea

Hi I wanted to create a video of photos and little video clips of Thea and where she is at right now in hopes that you get a sense of how she has developed over the past 4 years.  Hope you enjoy:)